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How Can I Prepare?

Learn about the knowledge and skills you will need to transition to adult care.

My past and present health

  • Know your diagnosis, past health history, allergies, current treatment plan/medications, and ongoing health issues.
  • Create a 3-sentence summary of your health history that you can explain to your healthcare team

Click the link below to learn more about how to create your own 3-sentence health summary.
My 3-sentence health summary  

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Your Voice Matters

When you go to an adult healthcare team, you will work with your adult healthcare team to choose the best treatment for you. Your adult healthcare team will speak to you directly, ask you questions and expect you to answer for yourself (versus your parents answering questions).

Here is what you can do to take charge of your care:

  • Speak about what is important to your health, but also your personal goals
  • Prepare for your visits by writing down some questions or concerns you wish to discuss with your healthcare team

Questions I have for my healthcare team

  I have thought about questions to ask my healthcare team  

Questions for my healthcare team  

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Notes will be lost once you leave the site.
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Tip: Click the button below to learn more about how to self-advocate and talk with your healthcare team
  • Learn to listen to your body, as you are often the first person to know when something does not feel right or is “off”
  • Use tools (i.e., your phone, sticky notes, or agenda) to help you remember to refill your prescriptions or take your medications
  • Keep track of your medications with a list that includes the names, doses, and frequencies of your medications
  • Pre-plan to ensure you have time for school, work, community participation and social activities in addition to your daily care routine
  • Use tools (e.g., calendar app, agenda) to help you schedule and keep track of your appointments
  • Have a plan for getting to and from appointments
  • If you miss an appointment, call the clinic to rebook
  I have my adult healthcare team phone number saved to my phone 
  • Be sure to get the details of your new patient support program (PSP) when you move to adult care
  • Find out if you have health insurance (benefits) coverage and where to find details of your coverage (i.e., an app, website or telephone number)
  I know where to find information on my insurance plan