Progress Tracker 73%
SCORE: gems

In the quiz on this page, there are no right or wrong answers, and you do not pass or fail.  Use this quiz to help identify what you already know about managing your IBD and the areas of care where you may want extra attention and help.

My IBD Knowledge

I can name my diagnosis *
Tip: If you are uncertain about your diagnosis, you can ask your caregiver or healthcare team to help you create a 3-sentence summary to help you describe your medical history and needs
I can explain my disease *
Tip: You can ask your caregiver or healthcare team to explain your medical condition using words you will understand
I can fill out a medical history form, and list my allergies *
Tip: You can write down the name of your diagnosis, medications you are taking and any allergies you have and keep this information in your wallet, bag or on your phone
I can name my medications past and present *
Tip: At your next medical visit, you can review your past and present medications with your healthcare team and ask them to share a list of your medications
I can take my medications, at the right time, using the correct amount (dose) *
I can remember to refill prescriptions on my own before running out *
Tip: You can use apps (eg Lyfe MD) to help you keep track of your prescriptions and when to refill them. See the Resources page for more information or ask your healthcare provider if there are drug-specific apps to help you keep track of your medications.
I know the side effects I might have from my medications *
Tip: At your next medical visit, you can ask to your doctor or nurse to review the side effects you might have from your medications
I can manage what to do if I am having a bad reaction to my medications *

Managing my IBD

I know how to describe my symptoms to my healthcare team *
Tip: At your next visit, you can ask your caregiver to step out of the room for part of the exam. This will encourage you to take charge and discuss your symptoms with your healthcare team.
I know the foods/activities that make me feel unwell or uncomfortable *
I know ways to help myself feel better physically and mentally *
Tip: You can use the box below (or your phone or agenda) to make a list of the activities you like to do and those that make you feel good.
I know how to read a thermometer *
Tip: You can ask your healthcare team about tips for reading a thermometer and understanding what the values mean
I know how to keep a stool calendar *
Tip: You can use the notes app on your phone or a small notebook that you can keep in your bag to help you keep track. You can also check out the resource page to learn more about tools that can help you track your stool.
I know how to keep a pain calendar *
Tip: You can use the notes app on your phone or a small notebook that you can keep in your bag to help you keep track. You can also check out the resource page to learn more about tools that can help you track your pain.

Working with My Health Team

I can name my gastroenterologist and IBD nurse and I know how to contact them. *
Tip: You can write down the name and phone number of your doctor and keep this information in your wallet, bag or on your phone
I can call the clinic to make appointments as needed. *
Tip: You can add the clinic phone number to your speed dial so you do not need to search for the number when you need to make an appointment
I can prioritize which health issues matter most to me and share them with the team. *
I can actively participate with my healthcare team when it comes to my care (i.e., asking/answering questions, participating in decision making). *
Tip: Before your next appointment, it is helpful to take time to think about and write down any questions you may want to ask your healthcare team about your medications or symptoms. You can use the text box below to write down any questions you have.
I can share past experiences, both successes & challenges, and talk about what matters to me. *
It may seem overwhelming to take charge of your health but know that your caregivers and healthcare team are there to support you!
Tip: Before your visit, write down or practice saying anything you want to discuss with your team
I can communicate honestly and openly with my healthcare team if something is not working or if I’m having trouble with the healthcare plan/treatments. *
It may be a little scary or uncomfortable to discuss things that are not working for you, but the more your share with you healthcare team, the more they will be able to support you!
I can follow-up on any referrals for tests, and check-ups/labs as needed *
Tip: The next time you have a health visit, you can ask your healthcare team to show you how to book lab tests and view the results

School & Social Issues

I can manage my IBD when away from home (bathroom access, take medications, diet, etc). *
You can check out the resource page for apps to help you find bathroom access.
I can speak to my healthcare team about how my condition affects my relationships and sexual health (examples: sexually transmitted infections, protection & birth control). *
It may feel uncomfortable to discuss these topics with your healthcare team, but remember they are here to support you and want what is best for you!
I can speak to my healthcare team about how my condition is impacted by using tobacco, a vape, alcohol, or drugs. *
I can talk to my healthcare team about ways to manage stress. *
Tip: You can ask your healthcare team for tips and tricks to help you manage the stresses in your life. They want to help!
I can speak to my healthcare team about how my diagnosis/treatment may impact my future plans *
I can arrange for rides/transportation to medical appointments as needed *
Tip: Look up the travel route before your visit so you know how to get there. If you will be taking public transit, you can ask your healthcare team for suggestions on the best transit route to get there
I can plan or prepare my own meals/food. *
Tip: You can ask your healthcare team if they have any resources that might help you to prepare your own food
I can manage my health insurance and know what it covers. *
You can ask your caregiver to help you find information about your insurance coverage (e.g., a website or document). You may also want to carry insurance information with you in your wallet or phone
I can manage my money/expenses and know how my medications are paid for. *